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(added on 8-2012) You have probably happened upon our blog page because you did some search for cleft lip ultrasound....well here it is and here we are. Adalynn just had her 6th surgery in less than five years. No it hasn't been easy....but it is what it is and we are okay.
First off, I want to tell you that it WILL BE OKAY!!! I promise. I cried buckets of tears, I mourned as if I had lost a child. Yet, in the whole scheme of things it is a scar. I measly little scar. Your child will be fine. Your child will be beautiful. And you will be okay. It will be a rough road. There are lots of surgeries to consider and probably feeding issues, speech therapy and such....but when it is all said and done, it is a scar and that is all! Both you and your child will be stronger because of it.
Be sure to click on the banner at the top to see our most recent posts and updates---with lots of new pictures, read below for my original post about finding out our daughter had a cleft lip, and don't forget to watch the video of our PERFECT BEAUTY and our PERFECT BLESSING!!! You will be inspired!
First off, I want to tell you that it WILL BE OKAY!!! I promise. I cried buckets of tears, I mourned as if I had lost a child. Yet, in the whole scheme of things it is a scar. I measly little scar. Your child will be fine. Your child will be beautiful. And you will be okay. It will be a rough road. There are lots of surgeries to consider and probably feeding issues, speech therapy and such....but when it is all said and done, it is a scar and that is all! Both you and your child will be stronger because of it.
Be sure to click on the banner at the top to see our most recent posts and updates---with lots of new pictures, read below for my original post about finding out our daughter had a cleft lip, and don't forget to watch the video of our PERFECT BEAUTY and our PERFECT BLESSING!!! You will be inspired!
--------------------------ORIGINAL POST --------------------------
2008
Approximately one year ago, we found out about Adalynn's cleft lip at a routine 20 week ultrasound. We had 4 additional ultrasounds to determine if her palate was involved, but she never gave us a great look at her face after the initial 20 week ultrasound because her hands/arms were ALWAYS up in or by her face, making the cleft very difficult to see. 2008
It is kind of funny because everyone thought I was nuts when I told them I thought she had a cleft lip after I saw the 20 week ultrasound and many people told me more than once I was imagining things. This (above) is the ultrasound that I could see it best in. If you look down and left of her nose, you can obviously see it. It was about a week later, when the doctor finally called and confirmed my suspicion (at that time, it was my worst fear). Now that she is here and more perfect than I ever could have imagined, I feel SILLY for being sooo worried. Adalynn is PERFECT!!!! We could not be more blessed or ask for anything else.
And here she is today...sleeping with her hands still up by her face. :)
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That's wonderful that you were able to find out at the ultrasound. Zoe too always had her hands in her face and we did not see her cleft before birth. She was a total surprise! I wish we had known prior so that the news would not have hit us like it did.
ReplyDeleteIsn't it funny how the one year mark makes you feel? When we hit ours with Abby, I think I could finally put that whole chapter behind me. They truly are special little girls!
ReplyDeletePrecious, precious girl.
ReplyDeleteIt's amazing how looking back at year milestones is a bit of a comfort to see how far you've come.
What a sweetie!!!! I just have to say that I am thinking of you during your long nights!!! That is so hard! Finally, Reid is sleeping well....and all because he is sleeping in his carseat. Seems wierd....but whatever works at this point!!!! Tomorrow, it will be some new issue to try and figure out!!!! I hope you are getting som much needed rest. Do take care!!!!
ReplyDeleteI just happened upon your blog because I googled cleft lip ultrasound. This past week we had our 19 week ultrasound, and our doctor thinks she may see cleft lip or cleft palate in our son. She couldn't be conclusive, though, so we're going back in for another ultrasound in 3 weeks. My husband and I have been handling the news surprisingly well (although that might change in 3 weeks when we know for sure). I cried through your video because your daughter is so beautiful. Thank you for your blog.
ReplyDeleteI just came across your blog also by searching ultrasounds with cleft. I wasn't sure if it's something found in just a basic 20 week scan, but I thought I'd look. I'm 30 weeks now and at my appointment today they said I was measuring very large... 34!! It could be that she just grew super fast in 2 weeks or I have too much fluid. Too much fluid is supposedly a sign of cleft, so I'm a little scared. My father in law and brother in law both have it but out of 24 grandchildren, not a single on of them has been born with it. So I guess it's bound to happen eventually, but I am terrified. I go for an ultrasound to check her growth and my fluid levels, and I suppose we'll go from there. I love that you have this blog and your daughter is beautiful. Seeing her puts me at ease in case we have this issue ourselves. She's beautiful and mine will be too!!
ReplyDeleteThank you for posting this wonderful video! My husband and I just had our 20 week appt. and were told that we needed further testing but our daughter has what appears to be a large cleft lip on the left side. That was a terrible day but as more days go by, we realize that she will be perfect and we shouldnt be so upset. The words you wrote and the video you posted truly helped me today. Thank you.
ReplyDeleteThank you for this post I have been goggleing information on clefs since I woke up. I found out yesterday at my ultrasound that my baby has a cleft lip and now my doctor called to schedule a amniocenteses I am so scared!!
ReplyDeleteTwo weeks ago, my husband and I were also told at our 19 week ultrasound that our new little one would have a cleft lip. I, like the posters above, found this page by googling "cleft lip on ultrasound." I am SO glad I did! You page has made me feel so much better and your video made me cry! Your daughter is so beautiful and gives me so much hope for the future. THank you so much, it really means a lot.
ReplyDeleteThank you so much for posting this amazing slideshow! My husband and I recently found out on our routine 20 week ultrasound that our baby boy has a bilateral cleft lip. It is parents' blogs such as yours that give us so much inspiration and reassurance. Congratulations on your three beautiful children. Your daughter is a truly perfect little girl. Thank you again...I can't explain how much it means to us to watch slideshows such as the one you created!!!
ReplyDeleteits really amazing and lovely to see unborn baby
ReplyDeleteI just found out my son (I'm now 21 weeks) has a cleft lip and they are unsure if his palate is involved. I am more worried about the pain of his surgery and if insurance covers it than his physical appearance because I know it can be repaired. How soon after do they go in for surgery and how long does the pain seem to affect the babies?
ReplyDeletethank you so much for sharing your story. i am 22 weeks and am expecting a CL son with possible palate. his daddy was a CLAP baby. i too have shed buckets of tears but after seeing pics of your gorgeous girl i am feeling hopeful that it will 'just be a scar' and that we are truly blessed to be able to have babies at all. (we have 2 daughters, non CLAP's)Im feeling better because of you - thank you again.
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