Her First Face...OUR PERFECT BEAUTY

Sunday, June 14, 2009

I won.....(and Herpangina)

No, I didn't win Herpangina.
Yes, this is what Adalynn was diagnosed with- on her birthday of all days!
FYI-Herpangina is just a fancy doctor word for blisters in her mouth. A real definition can be found here. But just know it is "super owie" and she is just now eating better 4 days later.

But, I really did win!!! I did! I did!!!!!
What, you ask?
I won a whole loot of stuff (a Pediped gift certificate, gardening gloves, Crystal Light, the coveted dental floss Aidan's mom raves about, and much, much more).
Who's Aidan?
Well, he is an adorable little man, born with a cleft lip, whose mommy also blogs (and is a teacher like I was in my past life). She found us shortly after he was born (he just turned one a few months ago).
And how did I win?
She did a blog contest/raffle/random generator thing....I left her comments on her blog and a program randomly chose me to win. Click HERE to read all about it.
Yes, we bloggers LOVE comments and will even give stuff away to get them. I may do it myself....

What do you think?
What do you want?
I am getting ready to have a garage sale....I am sure I can find something that I know you can't live without! :)

No, seriously. I KNOW that I have 'lurkers'.
I KNOW that there are people that read about Adalynn, her journey, and our family that I don't know.
Yes, it is a bit weird.
Yes, I wonder about weirdos!
But in all reality, I do know that I found several blogs before she was born that gave me peace and assurance that everything was going to be okay.
Thank you Rachel and Abby and Emily and Jaron and Zoe and.... well, I think that is it, but I am probably forgetting someone (leave me a comment ;0 and let me know if I forgot you).

So blog, I do. Mostly because I am forever grateful that the Lord led me to the above people,then led so many others to Adalynn, and most of all because our little "cleft-blogging club" was formed (with way too many people to list, but Aidan's mommy, Heather fits in there).

And by that, I won....in more ways than one!
One of these days I will meet you all and thank you for real.


.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:._.:*~*:.
and because no post is complete with out a picture-what better picture than one of Adalynn two years ago....on her birth-day meeting her brothers for the first time!



oh, and don't forget to comment and let me know you were here! :)

Thursday, June 11, 2009

Happy Birthday Sweet Baby Big Girl




Adalynn's birthday invitation (edited for the blog)




beautiful baby big girl!!!












Happy Birthday Adalynn!!!!!



Hard to believe that two years has gone by so quickly.
Hard to believe that it was only 2 years ago that we were blessed with the birth of our sweet baby girl.
Hard to believe that she has touched so many lives already through her story and this blog.
Hard to believe that she has had more surgeries than John and I combined.
Hard to believe that there are many more still left to go.
Hard to believe that she is not a baby anymore.
And is it hardest to believe that two years ago, I was worrying about what this face would look like.
This beautiful, perfect face.
Touched by God.
Given to us to teach us so much!
So, so, so hard to believe!

As I write this, she is laying in my arms. Most of the time she is way too busy and doesn't like being held like this unless she is sleepy or sick. Right now, she is definitely sick. Pretty crappy way to spend your birthday. She just isn't feeling good and we will probably be off to the doctor sometime this morning....gotta hate sore throats! Not eating/drinking makes for a very worried mommy and a very miserable little girl.


She did feel fantastic last week when Heather and Jesse visited. We had so much fun with them. We didn't really do anything special, just relaxed and enjoyed each others company. We were sad to see them go on Saturday evening and the visit went way to quick. It made us realize how much we miss both of them and can't wait to see them again!

me and Heather-who knew my afternoon classroom assistant would become my best friend

The whole gang



Jesse helped put Adalynn's big girl bed together...a great find off of Craigslist!

Adalynn yelling at (and kicking) Camden to get off of her new bed! And yes, she does have one shoe (boot) off and one boot on! Diddle, Diddle, Dumpling, my son John daughter Adalynn!


We were able to celebrate Adalynn's birthday this past weekend before Heather and Jesse left for Georgia. Jesse missed her first birthday while he was in Iraq, so we were very excited that he was able to spend this one with her.

Adalynn loves Elmo, so an Elmo party it was! She had so much fun and was super cute in her party dress. We had tons of fun making pizzas and eating Elmo cupcakes. We were also able to enjoy the sunshine and spend some time outside playing with new gifts--she LOVES sidewalk chalk and Camden picked out some for them to "share for her birthday".



And the best part.....we took lots of photos!!! Lots and lots of photos. It was hard to narrow it down, so I apologize for having so many-but I couldn't pick




the Elmo cupcakes!



all the kids making their own pizzas---Elmo's favorite food is pizza, ya know?




looking so sweet with her brothers!









love, love LOVE this photo I took of her walking in our back yard! Such a beautiful little lady!!!








Oh yeah, Broderick FINALLY learned how to ride his bike. We were so excited for him. He is still working on the braking part, though!

Adalynn enjoying the sidewalk chalk Camden picked out for her "so they could share"! He was just too busy riding bikes with his big brother to slow down and draw with Adalynn.

It was also a great weekend to be at the soccer fields....

Check out the girly dress and sunglasses with the skinned up knees!!!

looking so sweet at the soccer field!










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and the best one......









her movie star pose! Happy Birthday to our precious blessing!


Thursday, May 28, 2009

life-- as normal as it can be



I have been home for a few weeks now and things are slowly returning to normal. Soccer games, Cub Scouts, homework for me and Broderick, field trips, doctors appointments, cleaning, grocery shopping, and lots and lots and LOTS of laundry...yes life has officially returned to normal!

My dad is making great gains and is getting stronger every day. He is starting to make sense of some of the things that happened to him while he was in the hospital and I am proud to say that he has remained sober since being out. No drinking and no smoking! I hate that it took a heart attack and then intense alcohol withdrawal, but I guess that is just what God has to do sometimes.

John's dad is doing well and awaiting surgery on his heart. He will have valve replacement surgery in the next few months as well as a bypass (or two or three) and pacemaker wiring put in. We will probably be back in Indiana for his surgery-hopefully it is after the middle of June (Broderick's last day of school is the 17th and John's is the 18th). John's mom's lumpectomy was last week and she found out this week that they didn't get all the cancer. She is now supposed to have a mastectomy. Right now it is still unsure whether or not she will have to have chemo and radiation, but she meets with an oncologist in the next few weeks and we should have more answers. Please keep both of them in your prayers during this very difficult chapter in their life. God never said it would be easy, but He did let us know He would never leave our sides. Hold fast to your faith!!!!

Adalynn had an appointment with an audiologist at the hospital early last week. She has conductive hearing loss in one of her ears. . She did fantastic with the testing and did not have to have the BAER test. They were able to use speech recognition tests as well as the "look at the monkey" test (not the official name of the test, but I think you know what I mean). We also found out that both of her tubes are either out or just not working. We go back to her regular ENT tomorrow for some more answers and to see where we go from here.

Classes are going well for me and I am officially over a quarter of the way finished with my master's. It was tough trying to keep up with my work while I was in Indiana and at the hospital with my dad, but thanks to WiFi at the hospital and my mom's laptop, I did what I could. I finally caught up over the weekend and I am back on track.

We are excited that our best friends Heather and Jesse are coming to visit next week. I am even more excited that the guys got together and got Heather and me gift certificates to the spa. YEA!!!! I think I deserve a little bit of relaxation. Jesse just got back from Camp Liberty in Iraq after spending the last year as a fire fighter over there. I know he is going to be shocked at how big the kids have gotten in the past year, but I also know that I have two little boys that have been praying every night for Jesse's safe return and who are going to be SUPER excited to see him (and Heather too).

We are finishing up the school year and trying to decide if we are going to renew our lease and live in this house another year or try to find somewhere cheaper. Housing prices here are so ridiculously crazy compared to what we were used to in Indiana and in Georgia. Please keep us in your prayers as we make decisions about where we are going to live. We most likely will be staying in the same area so Broderick can have another year at the same school. He has already been in 3 different school systems....we really don't want to go for a fourth. Camden starts kindergarten in the fall and is all set on going to the kindergarten center, so we really don't want to make a lot of changes.

And here are some photos taken over the past month or so....



john is more than enjoying our view of storms coming in and dreaming about really storm chasing again...(yes, he took this photo from our deck) Pretty cool, eh?


The kids have enjoyed playing in our yard and the warmer weather....




Broderick with his teacher, Ms. Gossai. She's the best and has come to several of the boys' soccer games.



The kids with Jaden and Bailey. Our friends, the Tadda's (from GA) came to visit the week before I left for Indiana. Jaden is just a little younger than Broderick and Bailey is finishing 3rd grade. We had so much fun with them!



Broderick graduated from Tiger Scouts last Friday night and is now a Wolf. He really enjoyed Cub Scouts this year. Doesn't he look so grown up in his uniform? He had a pretty cool graduation ceremony with Indian face painting, songs, and a huge campfire!!



Camden loved finding wiggly worms at Camp Serranova, where Broderick's Cub Scout graduation was. It was such a beautiful evening!




Daddy with Adalynn and Camden. I am so greatly blessed!!!!!


Wednesday, May 20, 2009

22 Days Later....7 lbs. Lighter....

So here's the thing---my dad had a heart attack. Seems simple enough...longtime smoker, beer drinker, and not always the healthiest eater (take for example: he LOVES raw hamburger). YUCK!! Needless to say, his heart attack was well earned. I guess he had some pain awhile ago and even joked around to some of the guys at work that if he didn't know better, then he would have thought he was having heart attack....well, I guess he didn't know better. He WAS in fact having a heart attack. About a week later, when his chest was still bothering him, he decided to schedule a routine doctor's appointment. Well, low and behold, the doctor sent him to the ER and then the ER transported him via ambulance to the nearest heart center. Adalynn and I flew in the next day and plan to stay until Tuesday (a short 4 day trip).

Close monitoring over the next few days revealed elevated enzyme levels which seemed to indicate that he had most likely had several smaller heart attacks. On Monday, April 27 he was to undergo a routine heart cath where they would shoot some dye into his veins and see if they could see blockage and either clean it out (angioplasty) or place a stint in it to clear it. They found 90-95% blockage in the right coronary artery and were able to place 2 stints to clear it out. The surgery was a success and all went well.

The problems began as he was coming out of the anesthesia (which was just what they consider 'conscience sedation'-not even full anesthesia). At this time he began exhibiting signs of alcohol withdrawal. He began having Delirium Tremens (DTs). The main symptoms are confusion, disorientation and agitation as well as other signs of instability (especially with the cardiac and respiratory systems). They began administering medicines to sedate him but it was not working. 6 nurses, 2 security guards, physical restraints, and finally after some serious doses of Ativan he was sedated. Because of all of this his body went into respiratory failure and he was placed on a ventilator....all because he drank beer. I finally admitted that my dad was an alcoholic. It was hard to say and even harder to see the ramifications of it....but it was true. My siblings were furious at me for saying it, but it was true. My dad was/is an alcoholic!

Seeing my dad on a ventilator was very overwhelming. Adalynn and I spent day after day at the hospital. She was a trooper during the whole situation, but it began to wear on both of us. We weren't eating on a regular schedule and we were eating lots of junk. I was surprised that I actually lost weight, I figured I would have gained based on what I was eating. John drove in with the boys the following Sunday. They were a welcome distraction and boy was I glad to see them. My 4 day trip had already been extended. Thank goodness this all took place during finals week for John and then his two week break between spring and summer session. John and the boys stayed for a few days, but since my dad was still not showing any signs of waking up, he decided it would be best to head home with the kids. Yes, John drove from central IN to Eastern PA with 3 kids and a dog. They all did great. I was so sad when they left, but knew it would be easier to be at the hospital without Adalynn (although it was nice to have her there and she definitely kept me occupied). I am so blessed to have an amazing husband that was willing to let me be with my dad for such an extended time. The house was even somewhat clean once I made it home.

Well, 17 days after he went to the hospital and 15 days after he was sedated and placed on a ventilator one of the nurses decided to stop his sedation and see what would happen. They continued to keep him on pain meds. After a few hours he still was showing signs of Delirium Tremens and was agitated and not responding. My brother and I began to research the pain medicine he was on and found that it can cause similar symptoms. After speaking to the nurse about it, he completely stopped the medicine. Within a few hours my dad responded to my voice by blinking and winking at me and a few hours after that he was shaking his head yes and no. By the next morning he was taken off the ventilator and a day after that he was moved out of critical care. By the next afternoon they had him up out of bed and eating.


It was a long three weeks. Several times they thought they could wean the sedation and possibly take him off the vent. At one point they just risked it and took him off. Within 24 hours he was back on. I am forever grateful for the nurse that decided to take a chance and listen to us. What a blessing that we were able to find that information and that we had a nurse who was willing to listen. Dad stayed a few more days at the hospital and then was transferred to a rehabilitation center/nursing home. Less than a week later he finally made it home.

It was a very crazy few weeks. While all of this was going on, my mother-in-law was diagnosed with breast cancer, one of my best friend's husband lost his job, and my little buddy Ryan was given some pretty crappy news. I know God never gives you more than you can handle, but sometimes I really think he pushes you to the limit. I definitely felt pushed during this time.

Thanks for all of your thoughts and prayers during this crazy time. Enjoy your Memorial Day weekend. It has been beautiful here, so hopefully we'll get some great pictures of the kids enjoying the sunshine.

God Bless you all!!!!

Monday, May 11, 2009

What's better than Mother's Day?

THE DAY AFTER (at least it is this year for Shannon)!!!

Shannon's dad is now off all sedation and pain meds as of 1 pm this afternoon. He is slowly starting to become more aware of his surroundings. Shannon called about 30 minutes ago in tears and rejoicing that he winked at her on command 4 times in a row. He is still intubated but breathing on his own as well. The doctor's want him to build up his strength until tomorrow before they remove the tube. Continue to pray that all remains well.

Saturday, May 9, 2009

Happy Mother's Day from 600 miles away

Just wanted to wish Shannon a Happy Mother's Day from 600 miles away. We all miss you so much and wish you could be here. Have a good day and know there is a nice relaxing time at the spa (as well as us) waiting back in PA for you. Love you lots, ABC and J Frye.



Just to update everyone...Shannon is still in Indiana and the kids and I are back in PA. Shannon's dad is still in an induced coma but did show some positive signs the last couple of days; no neurological damage, no meningitis and a little eye movement/tracking. It will be two weeks on Monday that he has been in the induced coma and we hope and pray that these signs mean he is on the track to have the doctors bring him out of the induced coma. Please also keep my parents in your thoughts and prayers after my mom has recently been diagnosed with breast cancer and my dad will be undergoing open heart surgery in the next two months to repair a leaky valve. Finally, keep our friends Missy and Ryan in your prayers two as they continue to battle cancer.

On a closing note HAPPY MOTHER'S DAY to all the moms out there; may you have a day of pampering by your kids and spouses!